August appt and other happenings...

There was a surprise for the August appt... there wasn't one! I guess since we basically skipped July (didn't go until July 30th...) and our dr is out in August.. they just skipped! We go on Sept 3rd... another LOVELY 8:00 am appt. The ONLY good thing about that is that we get in and out faster, we did last time at least.

In other news, Jackson started WEE School at our Church last week and LOVES it! He is already learning more and it is only from 8-12 3 days a week, which is much less school that he is used to.

Ashton took a step, well, really it was more like a stomp, she moved one foot forward while standing on her own so I am putting it on record that her first step was at 8 months. I am sure she will wait until she is at least two to take another one since I have put that in writting! She has also given up on baby food almost all together. Some new foods that she has tried recently and really taken a liking too are real green beans, carrots, turkey sandwich with mustard, ramen noodles (I cannot eat these in front of her if I want her to eat something else), and cinammon toast crunch. She has pretty much decided it is only big girl food for her! She also broke another tooth through yesterday, top left...

Health wise, all is good. She is coughing a little more, but I am CONVINCED it is from extra saliva from teething... you can just about see it choking her... So, we are just doing our treatments and continuing to pray:)

She speaks!

So Ashton has now said 3 words! First was "Dada", which started out and still is sometimes "ada,", then was "Mama" (only once, never since!), and now, and the most frequent, "Bubba!" Jackson has been visiting the grandparents and we just got him back. She looked right at him and said "bubba" more than once in a several minute span...she was soooo happy to have him back, as were we:) He missed her too... he went straight for her when we picked him up. They definitely have a special bond and I pray that it grows as they grow older.

Some of you may have gotten an e-mail from Aaron in the form of a prayer request for a new CF drug. For those of you who didn't, here is your request. There is a drug that is in the works that will affect people with the DelF508 mutation, which is the mutation Ashton inherited from me. If approved, it will actually treat the actual defect in the gene, if I understand it right, not just the symptoms it causes... this drug has just moved to the next phase of testing! It is that much closer! Please pray for wisdom for the drs and scientists involved, as well as the safety and health of the patients particpating in the trials.

July Cough Culture

Just a short update... nothing abnormal on the July cough culture...yaay!

July appt and random pics

Ashton's July appt was uneventful, which is always good. They did say they would measure her for a vest at 18 months, and we will cross our fingers that she is big enough... since there wasn't much to report, I thought I would post some pics for you to enjoy. She has two new fave foods, pickles, and Nanny cookies. She devoured the Nanny cookie (aka tea cake) and sucked the pickle for like 10 minutes. She just grabbed it off a plate and went for it! The other two pics are just my babies showing out, Jackson is teaching her:)

update on vitamin levels

This will just be a short update. Nothing major, and really I just wanted to post;) They are probably going to reduce Ashton's vitamin dosage by half. I truly believe she should have always been on a regular vitamin like is recommended for all breastfeeding babies now rather than a CF vitamin. The difference is that the CF vitamin takes the fat soluble vitamins that people that have the digestive problems that come along with CF have trouble digesting, and make them water soluble. Since Ashton has no trouble digesting fats, I believe she should be on a regular vitamin. Don't get me wrong, as long as she is healthy, no big deal, but too much of a vitamin in your system can cause problems also. The nutritionist at Children's is great and has worked with us so much. As much as she could anyway. We haven't really needed the attention that most do, which we are extremely thankful for and Praise Him for! I don't think we are even going to see her anymore now unless we run into a weight or vitamin issue:) Anyway, yes, this is a random post, but I like to post every two or three days if possible...

Oh, and Jackson swears Ashton said "bubba" this morning! Also, it is becoming very obvious that Ashton's favorite place to play is "bubba's" room, and she LOVES purple hull peas:) (Talk about random!)

June cough culture and vitamin levels

The June cough culture looked great! Apparently exactly the same as last time meaning she still grew the influenza from last time but that is apparently no big deal...and apparently there really was some kind of staph on the last one that is not there now. All of that to say this one is good:) Also if you'll remember, they drew blood to check vitamin levels...which were all normal except for one type of vitamin E that was elevated. I would think better high than low but I am waiting for a call back on that. In other news, for the first time since she was born Ashton had a cold that got better before she had to go into the hospital! Praise Him! Also, in the space of two weeks she has begun to crawl, pull up, and has cut two teeth! She is keeping us all on our toes:)

June ACH visit

We had our June check up last week. Ashton weights 16 lbs and 5 0z and was 26 inches long... they are always off from her pediatrician who said 27 inches the week before:) Anyway... 50th percentile which is still the green, or "no risk" area! Yay! We are still waiting on results from the cough culture and the vitamin levels. She has a little cold right now and actually started getting sick the day before this appt, so she was sick while she was there. They said she sounded clear in her lungs, so they just told us to to four treatments a day instead of two, which we knew. Let me tell you, though it is much easier now that I am not working, it is still a challenge to get in four of those treatments a day... Anyway, a great appointment overall and I'll update again when we have test results. Hope everyone is doing well:)