So Ashton has now said 3 words! First was "Dada", which started out and still is sometimes "ada,", then was "Mama" (only once, never since!), and now, and the most frequent, "Bubba!" Jackson has been visiting the grandparents and we just got him back. She looked right at him and said "bubba" more than once in a several minute span...she was soooo happy to have him back, as were we:) He missed her too... he went straight for her when we picked him up. They definitely have a special bond and I pray that it grows as they grow older.
Some of you may have gotten an e-mail from Aaron in the form of a prayer request for a new CF drug. For those of you who didn't, here is your request. There is a drug that is in the works that will affect people with the DelF508 mutation, which is the mutation Ashton inherited from me. If approved, it will actually treat the actual defect in the gene, if I understand it right, not just the symptoms it causes... this drug has just moved to the next phase of testing! It is that much closer! Please pray for wisdom for the drs and scientists involved, as well as the safety and health of the patients particpating in the trials.
Sunday, August 9, 2009
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