Tuesday, April 28, 2009

Okay, so I haven't gotten around to taking pictures of the treatment "equipment" or making a video of the treatment, but I will try. I was looking at Ashton tonight and how she ADORES her big brother, and then at her fat rolls, and I feel so truly blessed. Ashton has dodged a HUGE bullet in that she is enzyme sufficient. I exchanged e-mails with a lady today who's daughter has to take the enzymes and she said that their drug bills top $70,000 annually! Only 15% of the people with Cystic Fibrosis are enzyme suffiecient. PRAISE HIM that we do not have to worry about meds with every meal, gaining weight, etc. Praise the Lord oh my soul!

Also, there is a new article out that can be read at cff.org. The article is very informative and discusses the very real likelyhood that in the next ten years CF will be a controlled disease, very similar to asthma! Woohooo... what wonderful news for the 70,000 people in the world who have CF and their families. Also, there are techniques out now that allow doctors to harvest eggs from women with CF, test those eggs, and fertilize and implant only those eggs that aren't carriers of a CF mutation! That means Ashton has the very real possiblity of eliminating the risk that her children will have CF, when before now her chance of having a child with CF was 75% if she married a carrier... they are making such progress... Praise God from whom all blessing flow!

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