Sometimes you forget

I have spent the last several minutes scrolling through some of the CF blogs out there. Most are parents that have children with CF, but a few are spouses of people with CF, or were spouses of people with CF. In spite of daily treatments, and due Ashton's AMAZING health, I very often and all to easily forget that we even have a baby with Cystic Fibrosis. It is STILL hard for me to write that. Oddly, saying it is easier, it is like I can kind of blow it off... and words float away. Something written stays put, right where it is. I forget, and then I hear a cough, or, like recently, she has a cough that just won't let go. With Jackson, I didn't worry, kids get colds, right? I no longer REALLY have that luxury, although it is unbelievable to me how often I tend to forget that too. People who are around me would probably find it laughable to hear me say that I forget, as they probably think it is all I talk about. Still, in the quiet, the in "circus" as my husband calls the little world my brain functions in, it is often forgotten. I do not want to dwell on it. I am THANKFUL that Ashton is SO HEALTHY that is is possible to forget. Yet still, in some ways, it is almost harder because when you remember it is all very, very fresh, and this happens several times a week, sometimes a day. Then there are those well meaning souls that won't let you blow it off. It gets mentioned, brought up, one way or the other, and someone makes a statement like this, "I knew so and so and they had a daughter that had CF that lived into her teen years." That DOES NOT HELP! Granted, those people have NO CLUE that the average age is now 37 years and that Ashton is not expected to have her life shortened AT ALL by this disease, and I know all of that, but still....

This is no pity party. I honestly just find it amazing and unbelievable that it is so easy to forget... and so painful when you remember. The MAIN thing is, however, that I praise HIM that, like I said, we are able to forget. She really is SO healthy. Thanks you Jesus. When I read the other blogs, I see where we could be, and I am so humbled.....